Pesky senses

[image shows a background of random light trails, with a column of pink text saying ‘smell, taste, hear, see, touch, move, feel’]

Managing sensory problems in everyday life

All of us humans rely on our senses every moment of every day. Our senses protect us and enable us to move around and engage with the world. Our senses bring us great pleasure and tremendous pain.

When our sensory systems work well they make our lives so much easier and much more interesting. Our eyes adapt to varying light, bringing pleasure through art and signalling hazards on our paths. Our noses welcome pleasant scents and warn us of rancid food. Our ears bring us the joy of music and alert us to oncoming traffic. Our sense of taste makes eating a pleasure and helps us avoid poisons.

We use touch to hold, manoeuvre and feel, as well as to be held and comforted, whilst an automatic response triggers us to remove our hand from a hot iron. Our temperature and pain sensors are closely linked to touch and help keep us healthy and safe.

As well as the usual five senses there are a number of other sensory processes which help us live our lives. Perhaps the most relevant here are our vestibular and proprioceptive senses. Our vestibular sense helps us balance and move, whilst our proprioceptive sense enables our brain to know what all the parts of our bodies are doing and where they are without having to look.

Our senses rarely work in isolation. Eating often starts with visual and scent cues triggering physiological responses like mouth watering, followed by taste and smell experiences as we eat. Walking along a pavement requires us to look and listen, touch and feel, as our bodies stay upright and move in a coordinated manner. Writing at a desk in school or typing at a desk at work means we need to maintain a seating position and carry out fine and gross motor activities whilst being alert to the environment around us.

If our sensory processes are seamlessly integrated as they should be, it’s easy to not even notice them. Most people can block out the background noise of a crowd to hear their friend talking as they stand side by side. Most people can cope with varying light levels. Most people can ignore horrible smells or make themselves eat something they don’t like. Most people can coordinate their movement and avoid obstacles. Most people manage their sensory experiences without even thinking.

Lucky them.

For many autistic people, sensory problems are one of the most disabling and hard to manage aspects of autism. Hypersensitivities can make us feel under constant attack, living in a heightened state of stress, triggering our fight, flight or freeze response. Hyposensitivities can make us crave sensory input, holding back urges to move, touch and fidget, feeling lost without sensory stimulation.

When our sensory systems are poorly integrated and disregulated we can feel uncomfortable and disorientated. It is much more complex that just being hypersensitive, which is what most people think of when sensory processing problems are mentioned. The combination of hyper-sensitivities and hypo-sensitivities across the senses makes it tricky to balance our individual sensory needs.

It was only as I started to learn more about my son’s sensory difficulties that I started to apply that knowledge to me. Recognising that this is a real thing, and not just awkward fussiness, means I feel more able to speak up if I am struggling. It also gives me the confidence to use strategies to help me manage my own sensory needs.

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My sensory life

Hearing – Many autistic people are sensitive to noise. We often hear things other people can’t hear, get annoyed and irritated by sounds other people are able to ignore, and we might find it harder to filter background noise.

For his first 7 or so years my son slept with a fan running every night, both to block out and dull background noise and to soothe him. It was only when we moved to house with traffic noise that he stopped needing this. I found that my sleep improved too. The steady hum of traffic is a welcome sound for us both.

Some people wear ear defenders and noise reducing headphones to help with hypersensitive hearing. My son didn’t take to them at all, but I’ve found them useful at work when the background noise increases or if I’m feeling particularly sensitive or irritable. I do struggle with an overwhelming urge to remove them though due to touch sensitivity. This is just one example of how my sensory needs have to be balanced as managing one sense can exacerbate another.

Hearing people eat is probably my most hated noise, and I have to leave the room if someone opens a packet of crisps, bites into an apple or sucks a sweet. The noise becomes all consuming and prompts a seething rage inside me.

I can also, when engrossed in one of my hobbies or interests, completely fail to hear what’s going on around me. At that point my senses are simultaneously hyperfocused and oblivious (this dichotomy is a common theme).

Smell – I gave up smoking a couple of years ago. I have always had a good sense of smell, even as a smoker, but it is so much more sensitive now. It makes the world really quite unpleasant when you can smell what others cannot. Everything is intensified and it all feels over-powering. I often intermittently hold my breath as I walk around to avoid wafting perfume and food smells.

At home we can manage this as my son and I have similar sensory profiles. My partner seems sensorily inert compared to us two, which helps – managing three lots of sensory needs would be an even greater challenge (I am in awe of larger families who manage this). We often eat separately. I cannot be in the room when my son eats marmite rice cakes (noise and smell) and he cannot cope with most cooked food smells.

For me, smells are the hardest sensory imposition to ignore, they get inside my head and stubbornly remain, often long after the actual smell has receded.

Taste – My son is almost certainly a ‘hyper-taster’ and he can detect the faintest of tastes. In contrast, he loves the strong flavours of marmite, salt and vinegar crisps and smokey bacon. Taste is closely linked to smell and, alongside textural sensory aversions, is at the root of his very restricted eating. These days I laugh off suggestions of hiding vegetables in his food, knowing that he would spot a hidden ingredient immediately and amused at the image of trying to hide vegetables in a marmite sandwich.

All people have food likes and dislikes. I suspect that most people can tolerate a disliked food for the sake of manners or kindness. For someone with a significant sensory aversion this can be impossible. If we overcome our initial refusal, and eat something we don’t like, we will probably retch and we might vomit. It isn’t being fussy, being asked to eat food we don’t like is on the same scale as being asked to eat a big fat juicy live slug.

My view is that as long as taste sensitivity doesn’t result in a harmful diet, it is not a big deal. Many people have dietary restrictions and special requirements and it usually isn’t too hard to be accommodated or, as a last resort, to take our own food.

Vision – Bright light is my nemesis. In fact, most light is problematic and causes me pain and stress. I know my visual perception is squiffy because other people cope fine. I mostly manage by squinting a lot, which is less than ideal.

At work I’ve recently moved from a large multi-aspect office to a small office where I can close the blinds. The difference is remarkable, resulting in no eye strain and no headaches, even after sometimes close to 10 hours in front of a screen.

Sunglasses, wide-brimmed hats and long fringes can help shade and filter, but they all exacerbate my tactile defensiveness so for now I will carry on squinting and avoiding. Light is easier to avoid than smells, sounds and tastes because I can close my eyes.

Touch – urgh! – Touch is essentially two senses as we both touch things and are touched by things. Like all sensory input, touch can have a big effect on mood. Stroking and manipulating items of different shapes, materials and textures can help both relax and awake us. Stroking the cat or using a wooden hand massager tends to calm me whereas fiddling with a tangle fidget toy or playing with a paperclip or blob of Blu-tack tends to increase my ability to concentrate and focus. Some textures can create a quite visceral reaction. I cannot touch (or even look at) lenticular images whereas my son loves them.

Being touched can cause a variety of responses. Brush past me and my whole body will feel repulsed and angry, but firm hugging (when anticipated) is wonderfully soothing and grounding. All labels must be removed from clothing, and clothes with itchy seams are quickly discarded.

Touch relates to pain and temperature too. It’s not uncommon for autistic people to have unusual pain and temperature responses. My son wears the same level of clothing all year round and only notices extremes of heat and cold. Even then he might need a prompt that he’s getting hot or cold! Similarly with pain. He often only feels it if he can see it. A minuscule injury will be felt as severe pain, whilst a punch to the arm will have little effect.

My pain and temperature responses aren’t as extreme as my son’s but I have noticed that they are different to most neurotypical people I encounter. I am always at odds with colleagues on temperature in the office and am grateful for my small sub-office where I have some control.

Vestibular – This is the sense which helps us balance, remain upright and move. Of all the senses I think my vestibular sense is the least problematic. I don’t struggle with swinging or spinning or get over-dizzy. My balance is acceptable. I don’t seek movement or avoid it.

My son is a spinner, he can spin and twirl for far longer than most, smugly showing off his lack of dizzyness. Swinging on a garden swing is one of his favourite things, going ever higher and faster. For most people these activities would be stimulating and energising. For my son they have an intensely calming and relaxing effect, and we have used the swing as a before bed activity when he’s been unable to relax at the end of a day.

Activities like spinning, swinging, jumping and hanging upside down are often assumed to do the opposite of calm, but it’s worth considering what effect they really have, rather than just assuming.

Proprioception – This is perhaps the most important sense, the one that tells our brain where the parts of our body are without needing to look. My proprioception is pretty awful.

This is the sense which makes me trip over my own feet if I’m not concentrating enough on how I’m moving. This sense makes me topple if I stand still with my eyes closed as I drift into my imagination and ‘forget’ I’m standing upright. This is the sense which makes me constantly move, apply pressure to, and fiddle with, my feet, toes, hands and fingers. This sense makes me over-extend my joints, contorting and stretching and hurting, all to remind my brain where everything is.

Proprioceptive feedback makes me feel more grounded, more organised and more coherent. Without proprioceptive feedback I feel floaty, less-grounded, as if gravity isn’t working. Sitting on my legs helps, as does a heavy blanket or a cat on my lap. I try to make use of my need to fidget by knitting and crocheting, but I also use fidget ‘toys’, doodling and random objects to fulfil this need.

My son is also a fidgeter. He craves deep pressure and will throw himself against me or the sofa, he loves rolling around and being squashed. When he was younger one of his favourite things was to be wrapped in a sturdy blanket and spun around, meeting his vestibular and proprioceptive needs.

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The myriad of ways our senses interact make for a complex picture. When one sense is heightened it can cause a chain reaction, sending us into a state of high alert, ready to fight off, evade or hide from the source. Stimulating one sense may calm others, whilst calming one may irritate another. We might be driven to extremes to satisfy sensory cravings, taking risks and harming ourselves in the process.

When we are able to find our sensory equilibrium we feel safe and comfortable, more able to focus, learn, work and relax. When our sensory needs are met we find it easier to do the things we find hardest.

6 thoughts on “Pesky senses

  1. Reblogged this on Under Your Radar and commented:
    Great post! Lots of great, great info here – and lots that I can relate to. Especially the proprioceptive feedback. Doing heavy lifting and hard work helps a lot with that. Also, touch. Classic tactile defensiveness, here – and the most frustrating this is how variable it can be. I’m never sure how I’ll be able to handle it. But it’s just part of my life, so…

    Liked by 2 people

  2. Do you have any thoughts on why it is so hard to leave the house? I know I must go to work to support myself, yet apart from that, leaving to go anywhere, even just shopping causes much reluctance and avoidance, to ing and fro ing that it takes an age to carry out something NT will just get on with!

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    1. For me it’s because (I think) I’m not in control when I leave the house. Not that I’m a despot at home! But it’s different. I prefer being at home and that’s fine. The Internet has made my life immeasurably easier, and more social 🙂

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  3. “when our sensory needs are met we find it easier to do the things we find the hardest” This!

    Since my burnout, I have found my sensory profile is much more ‘heightened’. I lost a lot of coping mechanisms and things that I could consciously tune out or plan to avoid before, now bother me a lot more. And yet my hyposensitivies are worse!

    These days, I rarely leave the house without at least a chewy and a fiddle toy in my pocket. If it’s going to be stressful I might bring my headphones and/or a brimmed hat. An oversized hoody if weather permits, I find it feels so much better than lighter weight or more revealing clothes.

    I also plan to reset and use sensory strategies to relax after a stressful day- rather than reading for example (as I would have before my burnout) once the sproglet is in bed, I have a weighted blanket for home use and will often be found tucked underneath, chewing, headphones on, ignoring the world until I feel ready to come out again!

    Liked by 1 person

    1. Thank you for your comment (and for reading) 🙂
      It’s all about finding what works for each of us and sharing ideas too. There’s some great stuff out there and lots of ways to improvise. My latest buy is some bright orange builders ear defenders to wear in the office!

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