A day in the life of a ‘food refuser’

image

My son has a severely restricted diet and, like many autistic people, he has strong sensory aversions to the appearance, smell, texture and tastes of a variety of foodstuffs.

He was breastfed and weaning started well. He tried and enjoyed a range of the usual weaning foods but slowly started refusing foods he had previously enjoyed. By the time he was 3 he was refusing to eat most food offered and by the time he started school his diet had settled into a now familiar routine of Marmite sandwiches, Marmite rice cakes, yoghurt, smoothies and fig rolls (fig newtons).

Breakfast

image

This image shows a plate holding crustless Marmite sandwiches, a small yoghurt and a multivitamin tablet. Alongside is a carton of smoothie. This is a standard breakfast for my son.

Sometimes the bread will be toasted. The carton of smoothie is vital as he refuses to eat fruit and vegetables, apart from a very occasional banana (which must be at an optimum level of ripeness, have no blemishes and, open easily and in a tidy fashion). Supplementing with a multi-vitamin and mineral tablet is vital to top up the essential nutrients he lacks in his diet.

Breakfast is the easiest meal of the day in many ways. It is almost always eaten at home and is fairly easily replicated if we are away.

Lunch

image

This image shows crustless Marmite sandwiches, a chocolate chip brioche and a Frusli cereal bar. On a school day he will take a packed lunch of Nutella sandwiches and a small chocolate bar. He does not have butter in his sandwiches and dislikes the way Marmite soaks into the bread.

Sometimes the brioche is swapped out for a crepe, and sometimes the Frusli is replaced with fig rolls. If we go out for the day we have to take a packed lunch as finding a place to eat which will have suitable options available is unlikely. The cereal bar is a new introduction to his diet and followed an extensive tasting session to find easy snacks for out and about.

Snack

image

This image shows a bowl of Marmite rice cakes. They are served in a bowl as my son struggles with the sensations of eating from the bag. On a school day he will have these rice cakes when he gets home from school and they have become part of his after-school decompression routine.

Dinner

image

This image shows 3 plates. One plate holds some well-done smoked streaky bacon. One plate holds crustless Marmite sandwiches and a pot of chocolate mousse. One plate holds a piece of homemade chocolate birthday cake.

My son has not eaten what might be considered a ‘proper dinner’ for many years. The last such meal was spaghetti bolognese about 7 years ago.

Bacon is the only meat my son will eat, and he would happily eat it every day. The sandwiches at dinner time are often replaced by a toasted bagel or little rolls, but always with Marmite. The chocolate mousse on this occasion was a treat and this element would usually be a yoghurt. Homemade cakes are a good way to introduce some eggs and butter into his diet and cocoa contains trace minerals.

He will occasionally eat very dark chocolate which offers some micro-nutrients and iron. Nutella contains some nuts, as do occasional Ferrero Rocher and peanut M&Ms. His favourite Innocent smoothies now come in varieties which include beetroot and carrot. Every little bit of goodness, wherever it comes from, helps when a diet is so restricted.

Despite the limited nature of his diet, my son is healthy, growing, developing and learning. An analysis by a dietician a few years ago found very little lacking and we were able to make little changes to address these deficiencies.

What have I learned?

  • Some children will not ‘eat when they are hungry enough’. A child like mine would rather starve than eat unpalatable food.
  • Hidden food will be discovered. I have still not been forgiven for the smidgen of soft cheese in a Marmite sandwich 10 years ago.
  • Hiding food in a favoured food might lead to the refusal to eat that food again. Trust is important. I ignored the advice to blend tofu (!) into a smoothie because smoothies are my son’s only reliably consumed source of fruit and vegetables.
  • No, he won’t copy his peers and eat what they eat. He doesn’t even notice his peers, let alone want to be like them.
  • Growing our own fruit and vegetables is fun, but his aversions and sensitivities are too powerful to overcome by novelty.
  • Getting him involved in cooking, ditto.
  • Just because he tried it and ate it once does not mean he will continue.
  • Carrying out ‘scientific’ tasting sessions with score charts has resulted in small successes.
  • Agreed changes and diversions are more likely to be accepted than subterfuge. My son needed to up his fibre and protein, we discussed a range of sources and he agreed to eat wholemeal/seeded breads and bacon.
  • It is ok not to eat together. My son eats at his chosen meal times and likes us to chat at the table as he eats. He often comes and talks to us when we eat our meals, depending what it is, he likes the smell of Italian and Indian foods but not the smell of fish or Chinese takeaway.

I am hopeful that my son will broaden his diet as he gets older. I try to make sure he can identify different foods and he has learned to cook a few basic meals. We talk about food production, sourcing, ethics and welfare. It is important he has a vocabulary to draw from should he choose to become more adventurous in the future.

I used to worry a lot about my son’s diet. It’s an area where parents face a lot of judgement and get given a lot of unsolicited advice. It’s hard not to think we aren’t trying hard enough, though I’ve yet to encounter a parent of a child with a restricted diet who hasn’t tried very hard indeed.

14 thoughts on “A day in the life of a ‘food refuser’

  1. He’s getting plenty of B vitamins 😀

    My parents were lucky as I only spent a few months in the “nothing but rice krispies with skimmed milk, and white bread with margarine” phase, but “hidden” foods were/are no less welcome. They claimed I liked brassicas when I was very little and must only have gone off them because my “little friends” didn’t like it. To put it in the least offensive language possible, bollocks. Brassicas are incredibly bitter and horrible and yet other kids at my school happily ate mounds of the stuff. And no, none of this making a smiley face or letting the kids help with growing or cooking or hidden vegetables or any of the other “helpful” stuff people suggest would’ve made any difference for me nor would they make any difference to any other kid like I was, let alone one who struggles more than I did, like your son.

    A few years ago I had some houmous. I like houmous. I had two mouthfuls and couldn’t eat any more, but didn’t know why. Looked at the ingredients, and it had parmesan in it! Just… why? I can’t stand cheese (have learnt to tolerate mozzarella and cream cheese, and on a good day, Dairylea or Laughing Cow (full fat only)), and it put me off bought houmous for months. I can detect hidden parmesan even when i can’t consciously taste it 😀

    It baffles me how people say things like “oh I put own-brand cheerios in a branded box I’ve saved – they happily eat it if I do that!” or claim that they can’t tell the difference between different brands of baked beans :-O Are these people for real?

    Like

    1. I’d forgotten the ‘make it look appealing’ advice, yes, because cutting food into shapes transforms it from disgusting to delicious…
      Yes to brand changes too. Most things my son is ok with brand changes but get it wrong and it can be a food off ‘the list’.

      Liked by 1 person

  2. Ha! With the exception of the actual foods, all of your post could have been written about my son. He ate most of what I offered him between 6 months and 20 months old, then started crossing things off his list one by one for the next year.

    Nowadays (he’ll be 10 in a few days): breakfast is banana-chocolate-chip pancakes (or waffles), hash browns, oatmeal, or grits. Lunch is kidney beans packed in a thermos, crackers or a rice cake (the large size, plain brown rice), two apple slices or some cucumber. Occasionally I will put in leftover popcorn, whole wheat spiral pasta, or some strawberries. Dinner at home is nearly always white rice with soy sauce, steamed tofu, and peas. Dinner out is either rice and tofu if we go for Thai, or cheese pizza, or French fries. Honestly the kid eats healthier than I do!

    For me this has been the easiest part of autism by far. I always know what to buy for him, and when I prepare his lunch in the morning I can just be on auto-pilot while the coffee kicks in. 🙂 These days he makes the rice himself (he could make the tofu but he gets upset that he can’t cut the block into exact same size cubes–even though I can’t either and it doesn’t bother him to eat uneven cubes). My husband and I don’t eat the same thing as each other (he eats meat, I don’t) so there was never any expectation that everyone has to have the same meal in front of them at dinner.

    As long as the child eats and is healthy–that’s all that’s important. I have more important battles to fight than listen to others complain about my son’s food choices.

    Liked by 1 person

    1. Thank you for your comment, I can’t help but be a little envious of your son’s interesting diet! Totally agree about there being more important battles, but it is surprising how opinionated ‘other people’ are about what children eat.

      Like

  3. Trying new foods with my 3 sons is exhausting. Not everyone has to be an adventuresome eater.

    But it sure is looked down on if you’re not.

    Like

  4. I’ve been thinking more about this post, and particularly everyone’s comments on how other people react to our food-refusing kids. Of course, each child’s tastes are different so this may not apply to all your readers’ children, but here’s my rebuttal: the same pickiness that makes my son refuse all the things on standard kids’ menus also makes him refuse soda, any candy that isn’t plain chocolate, and will also make him extremely unlikely to try alcohol or drugs when he gets older. Peer pressure doesn’t work on him, for eating or other things. So yes, while I am certainly dealing with some challenges that parents of neurotypical kids don’t have to worry about, in exchange I will be spared some of the issues that many of those parents will face with their children at some point. Hoping these thoughts help some of you.

    Liked by 1 person

    1. Yes, so true! Thank you for posting that. I am fairly hopeful our teenage years will be easier in many ways than his peers (and their parents!) because there won’t be any succumbing to peer pressure.

      Like

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s